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Much praise to you caretakers

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Topic: Much praise to you caretakers
Posted By: Thad in AR.
Subject: Much praise to you caretakers
Date Posted: 19 Feb 2020 at 7:35pm
I’ve started being my mammas care taker. Brother doesn’t seem to have time to help and my other brother lives 700 miles away. My wife works lots of hrs but still does a bunch for mother. She fell a week ago and broke her knee cap. She has a special brace to wear. I have to put the brace off and on after she showers or changes cloths. This has given me the chance to make sure she takes her meds like she’s supposed to. She was getting the meds mixed up. I’m so sad of her condition it’s tearing me up. She’s calling me at work often and it’s causing some grief.
I had to take over her finances a few months back.
I’m learning and getting used to the situation. I’m grateful for Jenny. She’s been a huge help and has the medical experience.
My hat’s off to each of you that have been through this or are going through this.



Replies:
Posted By: Hubert (Ga)engine7
Date Posted: 19 Feb 2020 at 8:06pm
Thad, being a caretaker for a family member, especially a parent, is one of the most demanding jobs there is and the stress will wear you down. Check on what is available in home health care services that can give you a break every now and then. We had my Mom for just a few weeks before she passed and just a month later had to bring my Dad to live with us for four years. We have had my wife's Mom for about five years now. She is 94 and in reasonably good health and can be left alone overnight if need be. Sometimes my wife goes to visit out daughter for a few days just to get a break and I can go to the farm for a few days and get some relief. Praying that our LORD gives you and Jenny wisdom and strength as you care for your Mom.

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Just an old country boy saved by the grace of God.


Posted By: Ted J
Date Posted: 19 Feb 2020 at 10:33pm
I'm doing that right now with my Mother Thad.  I've been doing it now for almost 2 years (July).  It is really hard and I have learned to keep my mouth shut when I want to just scream.  She is in GREAT physical shape, but her mind is not very good.  Thank the Lord that she is now in an 'assisted living' facility.  That takes a load off of me now.  I still have things that I have to do about every other day though.  Love will see us through this, the love of the Lord and our love for each other.  My wife is very understanding and knows I have to be away from home a lot.  It's just really sad when someone's mind starts to fail.  I pray others don't have to go through this, but I know that is not possible.
Prayers for you and Jen to help you through this hardship.  Give Mom a hug from another Allis nut.  That should give her a smile.


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"Allis-Express"
19?? WC / 1941 C / 1952 CA / 1956 WD45 / 1957 WD45 / 1958 D-17


Posted By: desertjoe
Date Posted: 19 Feb 2020 at 10:34pm

 Well,,Thad,,I really feel for you and Jen and your Mother. I'm hoping and praying that she gets better soon so as to free up your time like before. I won't try to sugarcoat anyone and say it has been easy being a caretaker,,,it is a very difficult and demanding responsibility that takes up a big part of a person's day. I have had several people come up to me and start telling  me their story about their experience being the caretaker for a family member that has since passed on. To a one,,,they have all told me they will not ever volunteer to do that again, They all had other family members that had so many different reasons as to WHY they could not take care of the sick person which is kinda sad but it is what it is,,,,,A person just gots to stretch your shoulders out even more and hope you gots room for even more to carry


Posted By: Bob D. (La)
Date Posted: 20 Feb 2020 at 4:26am
Prayers for you and Jenny. It is probably the most demanding and stressful task anyone has to undertake. I had the opportunity to do much the same for my best friend and neighbor during his last 6 months of life. His wife did her best, but she just didn't have the physical strength to handle him. That was near two years ago and I'm still worn out. Should the need arise, I would do it again, but just don't want to think about it. I pray that I suddenly pass and don't bring on such a situation to my family. God Bless.

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When you find yourself in a hole,PUT DOWN THE SHOVEL!!!


Posted By: Dave H
Date Posted: 20 Feb 2020 at 7:53am
Hubert has a great suggestion in checking in on the home health care services that may be available.  I just lost a friend and the wife had no idea of what was available until it was too late.


Posted By: TimNearFortWorth
Date Posted: 20 Feb 2020 at 8:26am
It is proven that many caretakers can be run down to the point of their own health declining so take extra care of yourselves.
Cancer in the family taking both parents within two years (plus the oldest brother passing between both parents) has taken a mighty toll on my family.
Somebody will need assistance with care duties and when it does not happen resentment can set in quickly.
Really surfaces when time to settle an estate as someone will carry that lack of assistance with care taking forever.
Stopping to discuss what is needed for help can be tough but has to be done; two of my sisters just could not get it into their heads that the brother with a dairy was not available early mornings and late afternoons/early evenings because he was milking.
That lead to complaints of spring/summer/fall when some wanted to get away but again, brother was busy with crops fighting weather windows.

Good luck with it and when the day comes, home hospice care may be a viable option like it was for our family as both parents would not allow any discussion about being put into a facility. 


Posted By: tadams(OH)
Date Posted: 20 Feb 2020 at 10:19am
Check with medicare I think they have home help aids that stop in to give a hand. Prayers for you and Jenny 


Posted By: john(MI)
Date Posted: 20 Feb 2020 at 10:58am
I read an interesting quote one day.  "If you are taking care of a parent and you get frustrated, just think about the years of care s/he provided you, without complaint!"

My wife and I work Home Care for elderly.  If the person is below the poverty level you can get paid, in MI anyway, for taking care of an elderly person, even a relative.  Current pay is $16.50/hr  M.I.L. receives 17xx hours of care per month.  You do the math.  Just thought I would throw that out there for yous.  After working my entire life and never receiving any assistance, not even unemployment, I don't have a problem accepting this one bit!




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D14, D17, 5020, 612H, CASE 446


Posted By: Ray54
Date Posted: 20 Feb 2020 at 11:33am
You are doing what you can,but at some point it likely will be more than you can handle. At least without harming your own heath. So keep in mind the suggestions of help from outside sources. It seems help is out there,just that it is hidden. I will stop and not rant and become political about the system. 

Pray and look to the Lord for help. And many here will pray along with me,for your situation.


Posted By: Thad in AR.
Date Posted: 20 Feb 2020 at 12:14pm
We have considered area of the aging to help a bit but don’t know the details. She’s lonely and that’s a problem as we live way out of town so she’s used to driving her self to town any time she wants.


Posted By: tadams(OH)
Date Posted: 20 Feb 2020 at 1:43pm
My mother has been in assisted living but she is running out of money and will be moving to a rest home, it's crazy that they won't pay for assisted living but will pay more for a person to go to rest home and get same thing, single room. Just more lobbyist getting paid from the rest homes.


Posted By: DMiller
Date Posted: 20 Feb 2020 at 2:19pm
Wife and I ended up taking up as errand runners for my Dad, he checked himself into a Assisted Living Center so would not become a family burden. Wife's Dad ended up with Emphysema at 67, full blown COPD with running bacterial pneumonia or bronchitis or both until lung function drifted too low to maneuver, she then aided her mother in care of him as Hospice workers, ugly year, uglier still that physicians and nurses had explained to the both of them did not want to go down that road but did not listen. Wife is still depressed as to how her Dad passed and nothing she could do but watch. Her Mother was but just over 10 years after, she lived a good long life but had been on blood thinners as well open heart surgery which related to her strokes. In the last year she had two small strokes back to back, went in the hospital one last time with another and as she laid in E-room she was found to be suffering from fluid filling her lungs, no way to stop it or control it or to prevent her death so SHE opted to just go to sleep and pass on, knew it was her time, entire family all about her.

My Dad was a alcoholic, had several small imbalance issues where fell, gave himself brain bleeds which eventually triggered a massive stroke in his sleep, went quietly and in no pain. Mom died in 92, older brother in 93 so Dad was trying to drown his sorrows thru a brown bottle, few would argue it with him. Younger Brother took care of our Grandmother, she had to have someone watch her finances and her meds where my shifts schedules prevented such, our Cousin also aided in that her Mom was already gone(Grandma's sis) and she felt obliged to take care of her Aunt. Lots of helping hands among all but still gut wrenchers all.


Posted By: desertjoe
Date Posted: 20 Feb 2020 at 2:29pm
Originally posted by tadams(OH) tadams(OH) wrote:

My mother has been in assisted living but she is running out of money and will be moving to a rest home, it's crazy that they won't pay for assisted living but will pay more for a person to go to rest home and get same thing, single room. Just more lobbyist getting paid from the rest homes.


 UMMm,,I guess I'm a little dense at the two descriptions you use,,,assisted living and rest home.  How do those compare with a "Nursing Home"?


Posted By: klinemar
Date Posted: 21 Feb 2020 at 7:12am
My wife and children were caretakers for my Dad until his Parkinson's disease made us unable to care for him and he went to the Medical Care facility. My Mom stayed home until she passed but needed help as she had crippling arthritis and could not drive. Currently we took care of my wife's mother who until recently lived near us and has Alzheimers and moved to an assisted living home. I am also looking after my 90 year old Aunt who is starting to fail. She played women's professional baseball in the 40's and 50's and is still pretty damn tough but her heart is wearing out along with her running gear! There were days when I had the why me attitude! Then I would say to myself some people are caretakers and some are just taker's!


Posted By: Thad in AR.
Date Posted: 21 Feb 2020 at 7:45am
Originally posted by klinemar klinemar wrote:

My wife and children were caretakers for my Dad until his Parkinson's disease made us unable to care for him and he went to the Medical Care facility. My Mom stayed home until she passed but needed help as she had crippling arthritis and could not drive. Currently we took care of my wife's mother who until recently lived near us and has Alzheimers and moved to an assisted living home. I am also looking after my 90 year old Aunt who is starting to fail. She played women's professional baseball in the 40's and 50's and is still pretty damn tough but her heart is wearing out along with her running gear! There were days when I had the why me attitude! Then I would say to myself some people are caretakers and some are just taker's!

Thank you. I find this quite inspiring.


Posted By: Stan IL&TN
Date Posted: 21 Feb 2020 at 8:37am
Thad my only suggestion is to keep your two brothers in the loop when it comes to managing your mothers finances. i have seen it happen that when one person handles the parents money that when the parent passes on the others get hurt feelings because they think there should have been more money left in the bank and think some stealing has been going on. So now not only do you have to care for your mother but you have to put on the soft gloves for your brothers. Take care and God bless.

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1957 WD45 dad's first AC

1968 one-seventy

1956 F40 Ferguson


Posted By: Thad in AR.
Date Posted: 21 Feb 2020 at 12:13pm
Originally posted by Stan IL&TN Stan IL&TN wrote:

Thad my only suggestion is to keep your two brothers in the loop when it comes to managing your mothers finances. i have seen it happen that when one person handles the parents money that when the parent passes on the others get hurt feelings because they think there should have been more money left in the bank and think some stealing has been going on. So now not only do you have to care for your mother but you have to put on the soft gloves for your brothers. Take care and God bless.

Stan I do keep them in the loop. So much that I’m sure they cringe every time their phone rings.
We’re keeping track of all we spend to keep her afloat.
My Colorado brother and an uncle has helped us some with expenses.
My brothers and have a good relationship so far. We’re in a share holder situation and we already split everything equal and everyone seems happy. I do know things can change. We’re well documented.


Posted By: tadams(OH)
Date Posted: 21 Feb 2020 at 1:20pm
Originally posted by desertjoe desertjoe wrote:

 UMMm,,I guess I'm a little dense at the two descriptions you use,,,assisted living and rest home.  How do those compare with a "Nursing Home"? 
assisted living is you have your own living area and a commons eating area and entertainment area. There's also a nurse that makes sure everyone takes there meds as required.
Rest Home is the same as Nursing Home


Posted By: klinemar
Date Posted: 21 Feb 2020 at 6:17pm
Thad,to protect your mom, your brothers and yourself you need power of attorney both financial and medical. This allows you to make decisions regarding paying your mothers Bill's and medical treatment. Hospitals do not have to honor a patients wishes for treatment or divulge information. Most do but on occasion some don't. A POA agreement gives you protection and allows you to make decisions about medical treatment a d honor your mother's wishes. I had one for my mom and am planning g on getting one for my Aunt. Your will be accepting primary care of your mom unless your brothers step in as alternates .


Posted By: Thad in AR.
Date Posted: 21 Feb 2020 at 7:53pm
Originally posted by klinemar klinemar wrote:

Thad,to protect your mom, your brothers and yourself you need power of attorney both financial and medical. This allows you to make decisions regarding paying your mothers Bill's and medical treatment. Hospitals do not have to honor a patients wishes for treatment or divulge information. Most do but on occasion some don't. A POA agreement gives you protection and allows you to make decisions about medical treatment a d honor your mother's wishes. I had one for my mom and am planning g on getting one for my Aunt. Your will be accepting primary care of your mom unless your brothers step in as alternates .


I am her power of attorney and Jenny is medical power of attorney. The brother here is secondary.


Posted By: Ted J
Date Posted: 21 Feb 2020 at 8:23pm
You're doing good buddy, everything sounds good.  It's a hard road, but just think of the alternative.  I have to agree with Bob D., I want to go quickly when that first hitch in the giddy-up happens.  i too do not want to be a burden to anyone.

After the fact, you will feel pretty good about yourself and will have a better relationship with Jen because of the love you shared with Mom.  It's hard, but very satisfying knowing you cared enough for the woman who brought you into this world.

Just don't go blaming anyone else for not being there.  That is a door you don't even want to open.  I saw it happen with my Aunts and Uncles about my grandparents.  Be happy YOU have that special time with Mom.  No matter now hard it gets, she just loves the heck out of you.  Don't lose your temper or get discouraged.  It's all about love.

If you need to talk, you still got my number?  You can and will do this.  Just think of all the dirty diapers you gave her......


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"Allis-Express"
19?? WC / 1941 C / 1952 CA / 1956 WD45 / 1957 WD45 / 1958 D-17


Posted By: klinemar
Date Posted: 21 Feb 2020 at 9:26pm
Thad if you get down in the dumps private message me here and I will respond!I have been through a lot of this with both parents and my wife's family. I lost my sister before both of my parents passed so I was and still am the Lone Ranger from my family! I can credit my wife and adult children for helping! It's not an easy task but as Ted says your Mom took care of you and now you can help take care of her!


Posted By: desertjoe
Date Posted: 22 Feb 2020 at 5:16am

  Hey Thad,,,Times 2 what everybody is sayin. If she is on Madicare, there are a whole lot of benefits available but like ole Ray says above,,,you just got to know where to look cause they do not  make those things readily known. Start with her case worker to find what your Momma qualifies for, and don't be surprised at some that she does not qualify for,,,it is amlost shocking what the guvment thinks she has to so without,!! Altho, there are lots that she can get, like Home Health,which provide a nurse for a 1 hour to come to your house up to 3 times per week to check up on her. Fact is,,there is a commercial that Joe Namath, (remember him?) talks about all the things that are available,,you just gotta call em and find out,,,he even says they have home delivered meals,,,who'd a thought ole Joe Namath is getting home delivered meals,,???  LOL


Posted By: Thad in AR.
Date Posted: 22 Feb 2020 at 6:05am
Jenny met with area of the aging. Yesterday. They came out to see what mom qualifying for. I was supposed to be there but circumstances at work held me up. The lady really liked mom and wants to help.

We didn’t have quite all the paper work she needed so Jenn and I will gather it today. Then a nurse comes out to evaluate the situation.


Posted By: desertjoe
Date Posted: 22 Feb 2020 at 9:14am

 Well,,,That is just great, Thad,,Ya'll are on your way to better care for your Mother. Thing to do is agree with most of the things available up front,,,you can always just cancel them that she doesn't like,,,,Clap


Posted By: Ray54
Date Posted: 22 Feb 2020 at 12:26pm
Hopefully the government people you deal with are into helping you and not having there own power trip. As much as I hate to say it a lawyer earned his pay helping my sisters and I with  parents  and the heath issues.



An for DJ question and it's probably different in every state,but here assisted living cannot handle the pills and such. So once you slip to far around the bend Wink you have go the nursing home route. Other things assisted living didn't do was help with bathing and getting dressed on a daily bases, unless you payed extra. Then it was about the same cost as a nursing home. And the workers didn't have as much training,so in my mother in laws case they caused trouble with her brittle bones.  Not that they were not trying to be careful just not knowing how. 


Posted By: Thad in AR.
Date Posted: 23 Feb 2020 at 6:31am
I had to go to town yesterday for some things. I went and got mom and brought her with me. First time she’s been out since she fell.
I did my running and took her to eat at a place she likes.
Luckily I knew the waitress and have since she was a little kid.
I went to pay and she showed me a check mom wrote last time she was there.
The check was from an old account mom had over 20 years ago. Same bank but wrong address and phone number. She told me the bank wouldn’t accept the check.
I payed that as well and thanked the girl for not going after mom.
When we got to her house I made her go through stuff to find more of those outdated checks. We found nothing. I’m gonna get all her checks and make her use a debit card.
My poor brothers are probably getting tired of hearing this stuff every day but it’s how it is.
I believe I’ve been in denial my self but now I’m getting slapped in the face with reality.
It was a fun day otherwise.


Posted By: TimNearFortWorth
Date Posted: 23 Feb 2020 at 9:31am
Our family researched home upgrades through a NY State program but Dad was too proud initially. Finally relented about 3 years before he passed so it was pro-rated as it was a 5 year deal, state took the balance out of the estate we just sold to a neighbor.
Many states have these programs for folks that want to/can still live at home and my Dad ended up with a new roof, new on-demand tankless water heater, new furnace and whole house insulation program. 
Family members were always on-site for reviewing suggested upgrades and the work they did as state program had pre-approved contractors, some our family had experiences with and they allowed "second choice" contractors to be used.

Something worth mentioning is our Dad insisted for years that the CC companies would forgive any CC balances when he passed so we watched that closely due to the daily calls from companies that prey on the elderly.
Well, low and behold, he was right as when contacted after he passed, the two cards advised that with a copy of the passing proof, they cleared both accounts and gave something in writing.
Was not a huge amount on either card but surprised all of us that the card companies did this, we figured we would have to pay them off.


Posted By: Hubert (Ga)engine7
Date Posted: 23 Feb 2020 at 12:42pm
Thad, I would look at a credit card vs a debit card. Here in Georgia if the card is compromised, i.e. unauthorized charges,  you are not on the hook for the loss if it is a credit card. Also with a debit card your Mom will have to have the pin number every time she uses it.

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Just an old country boy saved by the grace of God.


Posted By: Ray54
Date Posted: 23 Feb 2020 at 7:25pm
It is real easy to not figure out just how bad your parents mind has slipped. I knew my dad was not remembering everything,but he had a concussion when in his upper 70's. They said may have some short term memory trouble,did not know how lucky he and we where. But 10 years pass and mom has a stroke and she never got the left side working all the way after that. As mom is in the hospital,social worker in the hospital takes me aside and says my dad is to far gone to be left on his own.


It was amazing all the little thing mom did that without trying was covering up how bad dad's mind had slipped. Since we are 15 miles from town and had a place across the road from dad,we left him over night by himself for almost 2 years more. But the Lord provided in many ways. With myself and 2 kids in junior college living at home we got him and took him to lunch in town and to see mom every day for almost 3 years. A few days a month his brother or my sister from out of area and my wife would give the 3 of us normal ones a day off.(My wife was teaching school ) We finally moved in with him for the last months. Then as he got worse and need shots and medicine at all hours of the day he spent another 2 years in a nursing home along with mom. (Mom had always like doctors and hospital and liked the idea of a nursing home,with not much use of left side and other issues that was also a blessing)Which by then he had forgotten so much it was surprising how happy he was in the home.


But all people are different in just how much care you can give. As well as how much the cared for one is needing done for them. So don't judge yourself if or when it gets to be a bigger load than you can carry.

 I firmly believe since they don't remember things to begin with a mild anti depressant drug is very helpful thing. It really was better for my dad when he was at the home in that the doctor saw him often and got the dosage much better dialed in. Because before the anti depressant he would get mad about things from 30 or 50 years ago if old memories where triggered. The good thing it would go away fast to,but he was still upset,even though he did not know why.

If you have no other outlet for frustration Thad keep coming back and rant all you want. Not good to have to bottle to much up after a while. Will do my best to remember to hold you up in prayer every day. 


Posted By: Thad in AR.
Date Posted: 23 Feb 2020 at 7:26pm
Originally posted by Hubert (Ga)engine7 Hubert (Ga)engine7 wrote:

Thad, I would look at a credit card vs a debit card. Here in Georgia if the card is compromised, i.e. unauthorized charges,  you are not on the hook for the loss if it is a credit card. Also with a debit card your Mom will have to have the pin number every time she uses it.

Two very good points Hubert. I’ll run that by the family. That pin could prove to be a pain. Also at her age I know she’s a target.


Posted By: Thad in AR.
Date Posted: 23 Feb 2020 at 7:31pm
Originally posted by Ray54 Ray54 wrote:

It is real easy to not figure out just how bad your parents mind has slipped. I knew my dad was not remembering everything,but he had a concussion when in his upper 70's. They said may have some short term memory trouble,did not know how lucky he and we where. But 10 years pass and mom has a stroke and she never got the left side working all the way after that. As mom is in the hospital,social worker in the hospital takes me aside and says my dad is to far gone to be left on his own.


It was amazing all the little thing mom did that without trying was covering up how bad dad's mind had slipped. Since we are 15 miles from town and had a place across the road from dad,we left him over night by himself for almost 2 years more. But the Lord provided in many ways. With myself and 2 kids in junior college living at home we got him and took him to lunch in town and to see mom every day for almost 3 years. A few days a month his brother or my sister from out of area and my wife would give the 3 of us normal ones a day off.(My wife was teaching school ) We finally moved in with him for the last months. Then as he got worse and need shots and medicine at all hours of the day he spent another 2 years in a nursing home along with mom. (Mom had always like doctors and hospital and liked the idea of a nursing home,with not much use of left side and other issues that was also a blessing)Which by then he had forgotten so much it was surprising how happy he was in the home.


But all people are different in just how much care you can give. As well as how much the cared for one is needing done for them. So don't judge yourself if or when it gets to be a bigger load than you can carry.

 I firmly believe since they don't remember things to begin with a mild anti depressant drug is very helpful thing. It really was better for my dad when he was at the home in that the doctor saw him often and got the dosage much better dialed in. Because before the anti depressant he would get mad about things from 30 or 50 years ago if old memories where triggered. The good thing it would go away fast to,but he was still upset,even though he did not know why.

If you have no other outlet for frustration Thad keep coming back and rant all you want. Not good to have to bottle to much up after a while. Will do my best to remember to hold you up in prayer every day. 

I appreciate this a bunch.


Posted By: ErinHenry552
Date Posted: 27 Apr 2022 at 4:36pm
Dementia in old age is no different: it can affect anyone, including the bed-ridden patient. It is even more difficult for relatives in such circumstances. In addition to the physical burden of caring for a bed-ridden patient. It is very difficult to look at when it comes to a loved one. At first, I was quite concerned about my father's seizures and searched for a long time for effective dementia care on many forums, such as this one: http://https://www.thekey.com/learning-center/alzheimers-and-dementia-caregiving/how-to-have-more-good-days-with-dementia" rel="nofollow - https://www.thekey.com/learning-center/alzheimers-and-dementia-caregiving/how-to-have-more-good-days-with-dementia . This article helped me increase my knowledge in this area. Gradually I was able to take care of my father regularly. I wish you the same success in solving your problems.



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